Pfizer Support to European and International Patient Organisations in 2012
The below list contains information on the support Pfizer has provided to European- and international-level patient organisations in 2012, and services contracted from them (e.g. speaker fees). It follows the standards set out in the EFPIA code of practice governing relationships between the pharmaceutical industry and patient associations. Information on European- and international- level patient organisations relevant to other countries is cross-referenced. Atrial Fibrillation Association (AFA) Organisation Description The Atrial Fibrillation Association (AFA) is an international charity which provides information, support and access to established, new or innovative treatments for Atrial Fibrillation (AF). Funding € 4,670.07 Funding Description In 2012, Pfizer Ltd, as part of the BMS-Pfizer Alliance, contracted services from AFA as a consultant in non-promotional activity as a member of the steering committee of Action for AF, and attendance at the 2nd advocacy forum in Paris, March 2012. Expenses and honoraria were paid for both. Payments shown above are the total of Pfizer’s contribution to the Pfizer-BMS alliance, and are 50% of the total paid.
This information is also declared, with further details on expenses and funding for UK-focused work, on . Alzheimer Europe (AE) Organisation Description Alzheimer Europe is a non-governmental organisation aimed at raising awareness of all forms of dementia by creating a common European platform through co-ordination and co-operation between Alzheimer organizations throughout Europe. Alzheimer Europe is also a source of information on all aspects of dementia. Funding € 40,000 Funding Description A charitable donation by Pfizer Ltd to support the core funding of Alzheimer Europe.
Information on this support provided to Alzheimer Europe is also mentioned on the Pfizer Belgium websitelease be aware that the format may differ to follow Belgian transparency rules.
AntiCoagulation Europe (ACE) Organisation Description ACE is a UK registered charity founded in the year 2000. ACE works with patients, healthcare professionals, NHS trusts, Industry, Governments, other charities and patient groups and a wide range of other organisations. Its aims are: the prevention of thrombosis; the provision of information, education and support; the promotion of independence - supporting people to take
an active part in their own healthcare. Funding € 2,283.29 Funding Description In 2012, Pfizer Ltd, as part of the BMS-Pfizer Alliance, contracted services from ACE as a consultant in non-promotional activity as a member of the steering committee of Action for AF, and attendance at the 2nd advocacy forum in Paris, March 2012. Expenses and honoraria were paid for both. Payments shown above are the total of Pfizer’s contribution to the Pfizer-BMS alliance, and are 50% of the total paid.
This information is also declared, with further details on expenses and funding for UK-focused work, on .
European Federation of Allergy and Airways (EFA)
Organisation Description The European Federation of Allergy and Airways combines the forces of national patient associations on asthma, allergy and COPD for results at European level. The organisation seeks to improve the health and quality of life of people in Europe with those diseases and facilitates collaboration, sharing of knowledge and experiences. Funding €30,000 Funding Description A charitable donation by Pfizer International Operations to support the core funding of EFA. Information on this support provided to EFA is also mentioned on the Pfizer Belgium website (). Please be aware that the format may differ to follow Belgian transparency rules. European Federation of Neurological Associations (EFNA) Organisation Description The European Federation of Neurological Associations (EFNA) brings together European umbrella organisations of neurological patient advocacy groups, to work with other associations in the field of neurology, in what has been termed a ‘Partnership for Progress’. EFNA engages in activities, which contribute to the advancement of neurology and related areas with a view to improving the quality of life of people living with neurological conditions, their families and carers. Funding £25,000 Funding Description A charitable donation by Pfizer Ltd to support core funding. Information on this support provided to EFNA is also mentioned on the Pfizer UK website (lease be aware that this will differ in format as it follows UK transparency rules. European Gaucher Alliance (EGA)
Organisation Description The EGA is an umbrella organisation that supports and represents national Gaucher associations on a pan-European level. It has provided patient focused guidance, support and advice to industry, healthcare providers, governments, the EU, developing patient organisations, scientists and physicians and all other stakeholders in the Gaucher Community. Funding €31.000 + £25.000 Funding Description Pfizer International Operations supported EGA with €21,000 in support of EGA's core activities 2012, €10,000 for the 'Go With Gaucher' project, and £25,000 for ongoing activities. Information on this support provided to EGA is also mentioned on the Pfizer UK website (lease be aware that this will differ in format as it follows UK transparency rules. European Haemophilia Consortium (EHC) Organisation Description The European Haemophilia Consortium (EHC) is a European patient group representing national member organisations from 43 countries in Europe including members in all 26 EU Member States and the 2 candidate countries Croatia and Turkey. The EHC is working to reduce the burden of the disease on both the individual and on society. Its mission is to improve the quality of life of people with Haemophilia in Europe. Funding €81,000 Funding Description Pfizer Italia SrL provided EHC with project grants of €33,000 for Roundtable of Companies sponsorship and €33,000 for conference sponsorship, and a grant of €15,000 towards the cost of meeting with the Steering Committee. Information on this support provided to EHC is also mentioned on the Pfizer Belgium website (). Please be aware that the format may differ to follow Belgian transparency rules. European Institute of Women's Health (EIWH) Organisation Description Founded in 1996, The European Institute of Women’s Health (EIWH), is a non-governmental organisation based in Dublin established to promote gender equity in public health, research and social policies across Europe. The EIWH strives to make the health and well being of women and the family, a priority for the European Commission and EU Member States. Funding €15,000 Funding Description Pfizer European Service Centre provided an educational grant (project) supporting the EIWH 2011 work plan.
This information is also mentioned on the Pfizer Ireland website ). Please be aware
that the format may differ to follow Irish transparency rules. European Men's Health Forum (EMHF) Organisation Description The European Men’s Health Forum (EMHF) is the only European organisation dedicated to the improvement of men’s health in all its aspects, and a platform for the collaboration of a wide range of stakeholder groups in Europe. It aims to promote collaboration between interested individuals and organisations on the development and application of health policies, research, education and prevention programmes. In addition, EMHF strives to raise the profile of men’s health issues across Europe, develop Europe-wide policies and support the establishment and development of men’s health organisations that pursue similar objectives in each European country. Funding €60,000 Funding Description Pfizer European Service Centre provided EMHF with €10,000 of project funding towards EMHF's role in the organisation of the Danish Presidency-backed conference on Gender & Health Through Life in June 2012. Pfizer Ltd provided EMHF with €40,000 in a contract for services provided in support of the 'It is In Your Hands' campaign. Pfizer Service Company prospectively provided EMHF with €10,000 of project funding to support the production of a report on their roundtable on men’s access to primary care services, to take place in 2013. Information on this support provided to EMHF is also mentioned on the Pfizer Belgium website (). Please be aware that the format may differ to follow Belgian transparency rules. European Patients' Forum (EPF) Organisation Description The European Patients’ Forum (EPF) is the umbrella patients’ organisation at EU level. It brings together a broad range of leading European and national patients’ organisations in different disease areas. Representing over 150 million patients, the EPF is a key interlocutor with European institutions, and promotes patients’ rights, participation and involvement in EU healthcare developments. Funding €25,000 Funding Description Pfizer European Service Centre provided EPF with an educational grant (project) supporting EPF work plan Information on this support provided to EPF is also mentioned on the Pfizer Belgium website (). Please be aware that the format may differ to follow Belgian transparency rules. European Organisation for Rare Diseases (EURORDIS) Organisation Description EURORDIS is a patient-driven alliance of patient organisations and individuals active in the field of rare diseases. EURORDIS’ mission is to build a strong pan- European community of patient organisations and people living with rare diseases, to be their voice at the European level, and - directly or indirectly - to fight against the impact of rare diseases on their lives. Funding €50,000 Funding Description Pfizer International Operations provided €25,000 funding for ERTC (EURODIS round table of companies), €20,000 funding for the RareConnect project, and €5.000 for participations in the EURORDIS gala dinner in Brussels. Information on this support provided to EURORDIS is also mentioned on the Pfizer France website (). Please be aware that the format may differ to follow French transparency rules. International Diabetes Federation European Region (IDF Europe) Organisation Description As the only European advocate for people with diabetes and their healthcare providers, the International Diabetes Federation European Region works together with its member associations and other diabetes stakeholders to enhance the lives of people with diabetes. Many of IDF member associations are made up of people with diabetes and health care professionals. The mission of the International Diabetes Federation is to promote diabetes care, prevention and a cure worldwide. Funding €25,000 Funding Description A charitable donation by Pfizer Ltd.
Information on this support provided to IDF Europe is also mentioned on the Pfizer Belgium websitelease be aware that the format may differ to follow Belgian transparency rules. European Federation of the Elderly (EURAG) Organisation Description EURAG is a non-profit and non-religious European organisation independent of any political parties. Its purpose is to promote the quality of life of elderly people in society, at all social and political levels Funding €5.000 Funding Description Pfizer Corporation Austria GmbH supported the founding of a platform for patients with chronic pain (branding of the platform, patient website, informational and educational events, political lobbying to give the patients a voice, media coverage, etc.)
Information on this support is also mentioned on the Pfizer Aust) and Pfizer Belgium websit). Please be aware that the format may differ to follow national transparency rules. International Federation of Psoriasis Organisations (IFPA) Organisation Description IFPA is a non-profit organization made up of psoriasis associations from around the world. IFPA unites psoriasis associations so that their global campaign for improved medical care, greater public understanding and increased research will improve the lives of people who live with psoriasis and psoriatic arthritis and explore the challenges psoriasis presents to the international psoriasis community. Funding €55,000 Funding Description Project sponsorship - Corporate supporter of IPFA and World Psoriasis Day. International Dupuytren Society (IDS) Organisation Description The International Dupuytren Society is a non-profit organization where patients and medical experts cooperate. Goals are: informing about Dupuytren's Disease and about available therapy options, supporting research across medical faculties to better understand this disease, to improve therapy options and to ultimately find a cure, supporting patients who suffer from this disease and supporting local country organisations with similar or compatible goals. Funding €5,000 Funding Description Pfizer Deutschland GmbH provided project sponsorship for the International Dupuytren Award 2013/2014. Information on this support is also mentioned on the Pfizer Germany website (). Please be aware that the format may differ to follow national transparency rules.
Appendix I: SAATI Pfizer provided financial support to participants in Supporting Active Ageing Through Immunisation (SAATI), a voluntary and consensus-based partnership. A compensation of €1,600 was provided to each participant for their time, in addition to travel and accommodation arrangements for a two day meeting and telephone interview. Participants included Daphne Holt (Confederation of Meningitis Organisations [CoMo]), Christine Rolland (European Federation of Allergy and Airway Diseases Patients Association [EFA]), Hildrun Sundseth (European Institute of Women’s Health [EIWH]), Dr. Ian Banks (European Men’s Health Forum [EMHF]), and Katharina Braun (Die Bundesarbeitsgemeinschaft der Senioren-Organisationen [BAGSO]). Appendix II: EPPOSI Founded in 1994, EPPOSI is an independent, not-for-profit, partnership-based multi-stakeholder think tank based in Brussels, committed to making the EU-2020 strategic vision work through the
health and well being of its citizens. EPPOSI's Goal is to work at the "cutting edge" of European health policy-making providing its members and the wider public with high-quality independent research, capacity building, knowledge exchange and dissemination with the aim of bridging the gap between innovation and improved public health outcomes. EPPOSI is open to members from EU- facing patients’ organisations, economic actors, research institutes, professional and business federations, trade unions, diplomatic missions, regional bodies, as well as NGOs representing a broad range of civil society interests, foundations, international and religious organisations. In 2012, Pfizer, a member of EPPOSI, made a contributed €2,000 to EPPOSI's fellowship fund, which supports the participation of patient organisations and academics in EPPOSI's expert meetings by funding travel costs. It is declared here for the purposes of transparency. Appendix III: Funding to organisations engaged in some work with patients. Pfizer provides funding to a number of organisations that are not considered patient organisations, but which do perform some work related to patients. As such, they are listed here for the sake of transparency. Association of European Cancer Leagues (ECL): Founded in 1980, The Association of European Cancer Leagues (ECL) is a pan-European umbrella organisation of national and regional cancer leagues in the extended Europe, from Iceland to Turkey. It provides a unique and important platform for cancer societies, facilitating their collaboration, and aims at influencing EU and pan-European policies. ECL’s vision is to be a visible and effective player in cancer prevention, control and care, in particular in Europe, by identifying and promoting common strategies in cancer control towards achieving health equity in cancer prevention, treatment and services. Agency Double Helix, working on behalf of Pfizer, donated €1,200 to ECL as a charitable contribution in lieu of participation fee for Luc Joosens at a Pfizer advisory board. Pfizer also provided support, in the form of employee time, in the organisation of a flash mob and poster competition in European schools to raise awareness on the European Code against Cancer.
Information on this support provided to ECL is also mentioned on the Pfizer Belgium website lease be aware that the format may differ to follow Belgian transparency rules. Fungal Research Trust: The UK-based Fungal Research Trust supports education, scientific research, and patient information on fungal diseases. In 2012 Pfizer Ltd provided a charitable donation of £45.110 This information is also declared on Pain Alliance Europe (PAE): A multi-stakeholder alliance that aims to improve the quality of life of people living with chronic pain in Europe, by promoting awareness of chronic pain and promoting a European policy on chronic pain, in order to reduce the impact of chronic pain on all areas of European society. Pfizer Ltd provided PAE with a charitable donation to support core funding of €25,000; this payment was booked in December 2012 and paid in January 2013.
Soto/Sonnenschein Laboratory, Tufts University School of Medicine GNBCC Summer Internship July – August 2013 When Cheryl first sat us down and started to explain what the lab does and its scientific background, I have to admit most of it flew over my head as quickly as it came. There was one idea, however, that caught my attention: mutations do not cause cancer. I thought, well, there go
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